March 20 is LFS Awareness Day. March is LFS Awareness Month.
And May has been chosen as International Li-Fraumeni Syndrome Awareness Month - because LFS is SO bad that we need two awareness months!
International LFS Awareness Day is May 3 (5/3 for the TP53 gene)
Help us raise awareness of Li-Fraumeni syndrome (LFS), a genetic predisposition to developing a wide range of cancers. LFS is one of 7,000 rare diseases that affect 25-30 million Americans. It is estimated that over 500 families in the U.S. and over 1,000 multigenerational families worldwide have Li-Fraumeni syndrome. If you have LFS, welcome to team p53. We're sorry you're here, but we're glad you've found us. Learn more.
Donate $53 in honor of the TP53 gene, or $26.50 (half of $53, since those with LFS only have one functioning TP53 gene, instead of two, like most people!) You can also donate $5.30, or $530, $1060 (double $530!), or any amount.
Your donations allow us to provide LFS hardship grants for the Li-Fraumeni syndrome community, and to make events like the Jennifer Mallory Living LFS Family Camp possible. We thank you for your support!